Understanding adult support and therapies

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In recent years, there’s been a significant shift in the way supports and therapies are offered to autistic adults.

The focus is now on ‘choice and control’, allowing individuals to design their own support networks based on their unique needs, passions, and goals. This change offers the freedom to create a life that reflects who you are, rather than having a one-size-fits-all approach imposed on you. So, how can you manage your supports and therapies to make the most of this empowering shift?

Whether you’re looking to engage support workers who align with your interests or figuring out the types of services you want, having a strategy is key. Here, we help you navigate this process, from building your support team to making informed decisions about your therapies.

The shift towards choice and control

The National Disability Insurance Scheme (NDIS) in Australia has been one of the biggest drivers of this shift. For many years, services for autistic adults were prescribed by external professionals, with limited personal input. But today, autistic adults have a greater say in shaping their lives—deciding which therapies to use, how support is delivered, and who’s involved in providing it.

The NDIS is built on the principle of giving individuals greater choice and control. This means you can manage your funding, choose your support workers, and determine which therapies are most helpful for you. It’s all about self-empowerment—taking an active role in crafting your support network to reflect your lifestyle, goals, and aspirations.

But having choice can also bring challenges. With so many options available, it can be difficult to know where to start. Understanding your needs and preferences, and knowing how to manage your supports, can make all the difference.

What are my support options?

Before building your support network, it’s essential to know what’s available. Autistic adults can access various services like occupational therapy for daily skills, speech therapy for communication, and psychological support for mental health. Social skills training, support workers, employment assistance, and respite care are also options, offering help with social confidence, daily tasks, job support, and temporary relief for caregivers.

You can explore more details about the various supports and therapies available on our dedicated page here. Once you know the types of supports that resonate with you, it’s time to start building a network that works for your individual needs.

Building your own support network

Creating your own support network means choosing the right people, therapies, and resources that align with your life.

It’s about surrounding yourself with people who respect your autonomy and understand your preferences. Here’s how you can begin:

1. Identifying your needs and preferences

The first step in building your network is knowing what you need. Autistic adults are all unique, with differing sensory sensitivities, communication preferences, and lifestyle goals. Do you need help with managing anxiety? Are you looking for a support worker to assist with daily routines? Or perhaps you need a therapist who can help with specific challenges like sensory processing or social interaction?

Understanding your preferences also helps. For instance, if you’re passionate about art or animals, you might seek a support worker who shares that interest. If you thrive in quiet environments, it’s important to communicate that to anyone you work with. Defining your needs and preferences will give you a clear foundation to build on.

2. Choosing like-minded support workers

One of the most empowering parts of managing your supports is that you can choose who you work with. No longer are you tied to service providers that may not understand or respect your individuality. Choosing like-minded support workers can make a big difference in your experience.

Think about the qualities you want in a support worker. Are they patient and understanding? Do they share your hobbies or passions? For example, if you enjoy cooking, you might find it helpful to work with someone who can join you in the kitchen, encouraging you to experiment with new recipes.

The rapport you have with your support workers can influence the quality of the support you receive. Don’t be afraid to take your time finding someone who fits well with your lifestyle and personality. Many services now allow for meet-and-greet sessions, where you can meet potential support workers before committing to working with them.

3. Engaging your family and friends

While professional support services are valuable, many autistic adults continue to rely on their family and friends for assistance. These trusted individuals often have a deep understanding of your needs and preferences, which makes them an integral part of your support network.

If you find it difficult to advocate for yourself, your family and friends can help by supporting your decisions, offering advice, or even attending meetings with you. They can also provide emotional support, helping you navigate complex situations.

However, it’s important to set boundaries and communicate openly. Let your loved ones know how they can support you without taking away your independence or control. Finding a balance between professional support and family involvement ensures you have the help you need while maintaining your autonomy.

Examples of support networks in action

There’s no one way to structure a support network. Every autistic adult is different, so it’s essential to tailor your supports to fit your life. Below are some examples of what a support network might look like for different individuals.

Example 1 - Independent living with professional supports: Tara lives independently in her apartment but recognises the need for some support. Using her NDIS funding, she engages a support worker twice a week for help with household tasks and attends weekly occupational therapy sessions to manage sensory stress. Tara also sees a psychologist regularly to help with anxiety. While she values her independence, this combination of professional supports enables her to live comfortably on her own.

Example 2 - Family-oriented support with professional guidance: Sam lives with his family but is working on building independence. His NDIS plan includes social skills training and support workers to help him engage in activities outside the home. While his parents assist with daily routines, Sam enjoys attending a weekly art class with the help of a support worker who shares his creative interests. This mix of family and professional guidance helps Sam gain confidence and explore new opportunities.

Finding support that aligns with your interests and passions

One of the great aspects of managing your supports is the ability to choose services and therapies that align with your personal interests. Whether you enjoy art, sports, music, or technology, you can tailor your support plan to incorporate these passions. For instance, if you’re passionate about music, you might find a therapist who uses music-based activities to help develop communication and social skills. Finding ways to integrate your interests into your support network can make the experience more engaging and better suited to your lifestyle.

Combining hobbies with support

One approach that’s gaining popularity is combining hobbies with therapy or support. This can be a great way to stay motivated and engaged while working on your goals. For instance, some occupational therapists incorporate art, music, or gardening into their sessions to make them more enjoyable and meaningful. Similarly, a support worker who shares your interests can help you build skills while participating in activities you genuinely enjoy.

Navigating the NDIS

Managing your supports and therapies often involves navigating the NDIS system. It can sometimes feel overwhelming, but knowing your rights and how to make the most of your funding is critical. The NDIS is designed to give you choice and control, and it’s important to remember that you’re in the driver’s seat.

If you’re unsure about how to allocate your funding, or if you need help managing your plan, consider reaching out to an NDIS plan manager. They can assist with budgeting and ensuring your supports are aligned with your goals. It’s also beneficial to review your plan regularly to ensure it continues to meet your needs as they evolve.

Managing your supports and therapies as an autistic adult is all about taking charge of your life. Whether it’s choosing the right professionals, engaging with like-minded support workers, or involving your family and friends, the goal is to build a network that works for you. Having choice and control empowers you to live a life that reflects your individuality, passions, and personal goals. By crafting a support system tailored to your unique needs, you can thrive in a way that feels authentic and aligned with who you are.

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Helpful links

Understanding your plan - NDIS

Services and support - Autism: What Next?